Oct. of 2008 I went to the doctor for what appeared to be cellulitis from a blister that I had gotten from a pair of new shoes. My doc said I should throw the shoes out. Nope, I don’t think so. I loved them and am still wearing them today. She asked me to do blood work. Two days later she called me and told me that my liver enzymes were elevated and wanted to have me be retested for Hep B and Hep C. I was shocked beyond measure. I went and retested the blood work and she called me and said I was positive for Hep C.
I had gone back to the dr for a Hep B vaccine and the nurse was telling me that I basically could write a year of my life off! I don’t want to write a year off. She made me feel as if I was wearing the Scarlett Letter of A for afflicted.
Now I'm really freaked out. WHAT??!! She told me that I needed to see a Gastro doc for this and set me up for an appointment. How could this be? It had been over 30 years since I was living that life style. What was going to happen to my life? I did a great deal of crying and screaming at God “WHY?” This is so surreal.
I had gone online for information on Hep C and read several sites with much information. I had also spoken to people who have Hep C and tried to educate myself. I went to the doctor and was told this has probably been lying in my system for many years. He had me do more blood work to see if I could possibly be just a carrier vs. actually having the virus. Well, of course, I thought I was a carrier. Unfortunately, it was not the case. When I went to see him for the results he told me that I did in fact have the virus. I have genoa 1A. I'm shaking and crying and taking notes as he is speaking, knowing that I'd never remember what he was telling me. My life was about to take a dramatic change….
Thanks for stopping by and until next time….I stand still on the still waters. Diane
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Your story (and past lifestyle) is very much like mine. Mid 70's is when I met up with the virus. Slow growing virus - I didn't know I had it until 2007. Since then I have gone thru two interferon / ribavirin treatments. The virus returned four months after the first treatment. Second treatment ended a month ago. I will find out in Sept 2010 if it worked or not.
ReplyDeleteAre you facing this alone? It is the toughest thing I have ever had to deal with in my life by a long shot.
I am now a volunteer with http://www.hepcbc.ca/ providing peer support to others. If you like go to our homepage. Look for the link 'Peppermint Patti's FAQs' about 1/2 way down the page. Lots and lots of great information.
Perhaps there is a support group in your area. Best thing I ever did was join a local support group. Per Center of Disease control, 1 in 12 people in the world have Hep B or C. These are both viruses. You can be immunized for Hep B, but not Hep C. 1 in 12 means we are certainly not alone.
Please reply if you want to. This is tough to face on your own.
I have started a blog at: http://hcvwarrior.blogspot.com/
Take care,
Brian
Brian